currently, in addition to nausea, inability to eat/drink, and extreme bloating:
increased salivation
hot/cold flashes
extreme lethargy
headaches
mod-extreme shortness of breath in evenings (could be made worse by allergies, def related to bloating)
seeing movement in peripheral vision
slight twitching occasionally
feeling of increased heart rate occasionally
Monday, August 15, 2011
Sunday, August 14, 2011
by the way...
This support community has been exactly what I needed on more than one occasion: https://www.inspire.com/groups/agmd-gi-motility/
The past few days have been abundantly awful.
Actually, the past week had been pretty damn bad, but it's the extreme shortness of breath that really bothers me. I feel like I could suffocate, but I know panicking will only make it worse. I think it's a combination of allergies and gas from eating (anything really, these days). Having a spell. Good thing I bought all that food!
That's another thing I hate, wasting food. I have all this good stuff that I want to make, that I could eat when I'm stable, but this comes on so suddenly that I fear it going bad. Plus, cooking relaxes me. So, if things don't improve in the next day or so, my co-workers will be getting a treat.
I haven't been able to go out in the evenings at all the past few days. Went to the Saints game on Friday, but ended up being sick later that night. Didn't even try last night due to the not being able to breathe. Figured I just can't eat hardly anything, so today, I had about a half cup of grits in the morning and some chips and salsa in the late afternoon (both times I prepped by taking 1 1/2 pills (Cisapride). And now, now I feel (and look) pregnant and can't breathe. I really hate this. I don't know how many times I can say this. If I was on a path to becoming a hermit before, this just solidifies it. I'm only good in the morning. Basically, my free time away from my consuming job is ruined a lot of the time. Being on the internet is about all I can do from a horizontal position. Reading yes, but I tend to fall asleep these days. The other night I did do some drawing though, so that's something.
That's the other thing though. I'm so tired, so tired all the time. Caffeine doesn't even matter anymore. I can have three shots of espresso and still pass out on the couch after reading a few pages. It's not lack of sleep either, unless I need more than 9 hours, which is ridiculous. Today, I got the shakes from carrying a couple grocery bags into the house. I sat on the balcony and spaced out, let my body sink for a good half hour before feeling "right". I just feel weak and my body feels old. I'm sure part of it is nutritional. I've got to get better about the vitamins.
Actually, the past week had been pretty damn bad, but it's the extreme shortness of breath that really bothers me. I feel like I could suffocate, but I know panicking will only make it worse. I think it's a combination of allergies and gas from eating (anything really, these days). Having a spell. Good thing I bought all that food!
That's another thing I hate, wasting food. I have all this good stuff that I want to make, that I could eat when I'm stable, but this comes on so suddenly that I fear it going bad. Plus, cooking relaxes me. So, if things don't improve in the next day or so, my co-workers will be getting a treat.
I haven't been able to go out in the evenings at all the past few days. Went to the Saints game on Friday, but ended up being sick later that night. Didn't even try last night due to the not being able to breathe. Figured I just can't eat hardly anything, so today, I had about a half cup of grits in the morning and some chips and salsa in the late afternoon (both times I prepped by taking 1 1/2 pills (Cisapride). And now, now I feel (and look) pregnant and can't breathe. I really hate this. I don't know how many times I can say this. If I was on a path to becoming a hermit before, this just solidifies it. I'm only good in the morning. Basically, my free time away from my consuming job is ruined a lot of the time. Being on the internet is about all I can do from a horizontal position. Reading yes, but I tend to fall asleep these days. The other night I did do some drawing though, so that's something.
That's the other thing though. I'm so tired, so tired all the time. Caffeine doesn't even matter anymore. I can have three shots of espresso and still pass out on the couch after reading a few pages. It's not lack of sleep either, unless I need more than 9 hours, which is ridiculous. Today, I got the shakes from carrying a couple grocery bags into the house. I sat on the balcony and spaced out, let my body sink for a good half hour before feeling "right". I just feel weak and my body feels old. I'm sure part of it is nutritional. I've got to get better about the vitamins.
Monday, June 6, 2011
what the crap?
Ok, so maybe I'm an idiot, but I thought Prilosec and Prevacid (hello, it's in the name) did more than alleviate heartburn. I DON'T HAVE HEARTBURN. My fucking mid-section feels like someone is twisting it, HARD. Hence the ibuprofen. How the hell is heartburn medication supposed to help. I don't get it.
Still in flare-up mode. Things seemed to go back to "normal" after last weekend, but went back to crap this weekend. What is it about weekends?! Dammit! So yeah, not able to eat much again and I should be sticking with liquids, but it's very hard. Was taking a lot of ibuprofen to combat the pains, but doc said to cool it with that and try Prilosec or Prevacid (???). We'll see. I'm so glad I made an ENORMOUS amount of baked ziti last night. Thought this would let up soon, but maybe not, so I froze most of it. Food stresses me the FUCK out.
I asked the doc if your woman times could affect the flare-ups and he said he's had a few people who have seemed to have that problem. Since I'm on the 3-month pill (for endometriosis and cysts), I'm thinking that's why it's particularly bad right now. (I'm at the end of the 3rd month). Looking back, all the other more manageable flare-ups have been mid-cycle (or when it would be my time, if I weren't on this wackadoodle pill). So, it seems logical to me. And shitty. Also shitty.
As if dating weren't hard enough.
SWF. 33, never married. (Hmmm.) Has fun, quality-of-life medical issues and is possibly sterile, or will be soon. Also, half blind with an "artistic temperment" (read: moody and sometimes depressive). Make a line, boys!
I asked the doc if your woman times could affect the flare-ups and he said he's had a few people who have seemed to have that problem. Since I'm on the 3-month pill (for endometriosis and cysts), I'm thinking that's why it's particularly bad right now. (I'm at the end of the 3rd month). Looking back, all the other more manageable flare-ups have been mid-cycle (or when it would be my time, if I weren't on this wackadoodle pill). So, it seems logical to me. And shitty. Also shitty.
As if dating weren't hard enough.
SWF. 33, never married. (Hmmm.) Has fun, quality-of-life medical issues and is possibly sterile, or will be soon. Also, half blind with an "artistic temperment" (read: moody and sometimes depressive). Make a line, boys!
Sunday, May 29, 2011
#^$&@*!
The evening of May 26, 2011 is when it started. Now this is a full-blown flare-up. Not even the usual extreme and uncomfortable bloating, but pain. Not just the mild discomfort pain, but the pain where I can't move around. It feels like my entire mid-section is twisted and stuck with pins. It hurts in my back too and I can hear my stomach gurgling and have the occasional spasms. I didn't eat anything until 4pm today because I was scared. Even then, I had chicken tortilla soup with a very small slice of bread torn up and put in the soup (to make it more easily digestable) and a small amount of chocolate ice cream. I can't believe that did me in. I hate this. I hate going back to how it was before the pills. I wonder if I've built up a tolerance or if this is just a particularly bad Bad Time. I have all this food in the house and I can't eat it. I hate that. I'm hungry, but I'm scared of eating. I HATE LOSING TIME! This would happen on a three-day weekend.
Monday, May 16, 2011
Mark your calendars
May 15, right on schedule. Bad time ramped up. Exasperated, no doubt, by the fact that I ate without taking a pill. Ate at 4:30pm. Took an hour nap after that and from then on 'til early in the morning, my stomach (entire mid-section) hurt so bad I couldn't move. It subsided when I laid still, but getting up and doing things made it feel like someone took me by the shoulders and hips and just twisted with all their might, like a dishcloth being wrung out with force. The timing of these things over the past six months makes me think the flare ups are connected to my cycle.
Sunday, February 13, 2011
Entering a Bad Time, as of last night. Don't really want to talk about it, but thought I should log it for future reference. Extremely bloated, nearing painful, nausea, burping. Ginger ale for dinner and even though I have so much to do, reading on the couch is in my future.
Real tired of this. Tired of lost time. Tired of it sneaking up on me, even with the meds. Wish I could make people understand without having to explain it. Feel like a whiner as it is.
Real tired of this. Tired of lost time. Tired of it sneaking up on me, even with the meds. Wish I could make people understand without having to explain it. Feel like a whiner as it is.
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